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Information

This page will provide some very basic but important information on tuberous sclerosis. It will also answer questions that are frequently asked. This page will be updated on a regular basis so you can be informed of the newest information available.

Basic facts about Tuberous Sclerosis.

Frequently Asked Questions about Tuberous Sclerosis.

HEALTH RESOURCES:

New Hampshire Div. of Vocational Rehabilitation

State. Dept. of Education
78 Regional Dr., Concord, N.H. 03301-9686
phone: 603-271-3471

New Hampshire Govern't Commission for the Handicapped (CAP)
57 Regional Dr. Concord, N.H. 03301
Phone: 603-271-2773

New Hampshire Helpline
2 Industrial Park Dr., Concord, N.H. 03301
Phone: 800-852-3388 (In NH)
603-225-9000
603-271-4501

SUPPORT SERVICES:

MUMS (mothers United for Moral Support) Phone: 603-624-6948

Parent to Parent Phone: 800-698-Link (In NH) or 603-448-6393

NATIONAL RESOURCES:

National Tuberous Sclerosis Association: 1-800-225-6872

ARCH National Resource Center
(Respite Care Locator): 1-800-773-5433

Arc (Association for Retarded Citizens): 1-800435255

Autism Society of America: 1-800-328-8476

Epilepsy Foundation of America: 1-800-221-6827

Learning Disabilities Association of America: 412-341-1515

National Easter Seal Society: 312-726-6200

National Fathers Network: 206-747-4004

National Information Center for Children & Youth With Disabilities (NICHY): 1-800-695-0285

National Organization of Rare Disorders (NORD)
1-800-346-2742

National Rehabilitation Information Center (NARIC)
1-800-346-2742

PHARMACEUTICAL MANUFACTURER'S ASSOCIATION-

Patient Assistance Program Directory
(free perscription drugs) 800-762-4630

Social Security Supplemental Income
1-800-772-1213

Like the Unicorn, children suffering
from Tuberous Sclerosis possess
Strength, Purity, and Innocence...

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